I came across a strange referral link to my blog website the other day so I decided to check it out and this is what I found:
At first, I was devastated, how could anyone be so cruel; but then I read it again and just laughed at it. This anonymous keyboard warrior is claiming that because I have nice hair and plucked eyebrows in my photos, I must be faking my illness. Oh, no! I’ve been caught out. Let me just get back to my incredible life that I willingly walked away from for some ‘internet sympathy’. HA. I. Fucking. Wish.
I knew there would eventually be some sort of negative that would come from being so open and raw about my experiences online so I wasn’t all that surprised or offended by this ‘attack’. However, there are pages and pages on this forum and many others like it of people cyber bullying those like me who are open online about their disabilities/diseases.
Firstly, what the fuck!? Do these people have nothing better to do with their time? They literally stalk the crap out of people, find ALL their social media accounts and plaster these forums with screenshot after screenshot, some of which go back years into someone’s timeline! It’s honestly the most pathetic thing I’ve ever seen.
Secondly, my heart breaks for the hundreds of others who experience this kind of abuse. This sort of personal attack could easily push someone over the edge. This is why I wanted to speak publically about this – This is cyber bullying and it is NOT OK.
Mental illness often goes hand in hand with chronic illness. Not because we’re all delusional and making it up, but because our lives are extremely difficult and when you lose as much as we have it’s easy to fall down the hole of depression and/or anxiety. We often get lost in a broken medical system, unable to find answers or help. We spend every day fighting against our own bodies just to make it through the day. We don’t need this kind of hate from low-lives on the internet making our already difficult lives harder.
Social media is used in such a powerful and positive way by the disabled/chronic illness community. For the most part, we use it to come together, because being this unwell is such an isolating experience. Seeing that we are not alone in our experiences makes it just that little bit more bearable. We should not be made feel like it is ‘attention seeking’ or even worse, that we are lying about it.
I acknowledge that there are people out there that do fake their illnesses online for profit or attention but they are the exception, not the standard. People actually get sick all the time, for realsies.
I spent some time thinking about what to do about this. Should I stop blogging? Should I make all my social media accounts private? Should I start posting REAL photos where I wear no makeup and have messy hair? Should I write a ‘rebuttal’ on the forum and defend myself?
I came to the conclusion that shouldn’t do any of these things. I am going to keep doing exactly what I am doing because I know I have nothing to hide and I know I am doing a great thing by being a voice for the chronic illness and undiagnosed community! No matter what I do, there will always be others who will critique me or question me but that’s ok. We can’t please everyone, all the time.
For those of you that have ever been bullied, which sadly I know will be most of you, remember that whatever is said about you is more of a reflection of them than it is of yourself. Allow the experience to make you even more confident within yourself.
To my beautiful supporters – feel no sympathy for me because of this. Instead, I ask that you share my experience with others to both expose these bullying cowards and to hopefully show anyone who experiences this that you shouldn’t let it define you – let it strengthen you.
I hope you find rainbows today.