Reflecting Upon The Significance Of A Diagnosis

For the last 13 months, my focus has been on getting a diagnosis. Looking at the state of my health, it makes sense. I am sick and I don’t know why, therefore I need an answer; a diagnosis. Should getting a diagnosis be the most important thing I am working toward in my life right now? Well that’s what I am trying to figure out. Continue reading

10 Ways To Make Doctors’ Appointments More Productive When You Are Chronically Ill & Undiagnosed

Doctors’ appointments can be very daunting and overwhelming when you’re chronically ill and especially if you are undiagnosed like myself. It’s so easy to get caught up in the stress and frustration of doctors’ appointments and have them be unproductive and unpleasant. To avoid this however, I have come up with a list of 10 ways to make doctors’ appointments more productive when you are chronically ill and undiagnosed. Continue reading

My First Year Anniversary: Reflecting On Loss and Rebirth.

Today marks exactly a year since my life changed completely. I’ve been procrastinating writing this post for a while now. I’m still not sure why exactly, but I have. Perhaps I am still trying to process the rollercoaster of emotions that come with any sort of anniversary. Continue reading

The Hardest Thing About Being Undiagnosed is Being Subject To Doubt & Disbelief [VIDEO]

Hi everyone,

I’ve decided to speak about my biggest insecurity and hardest challenge I’ve faced while being undiagnosed and that is being doubted by others – medical professionals, strangers and even close friends and family. Watch my emotional video as I talk about my experiences.  Continue reading

Why You Need To Stop Apologising To Your Chronically Ill Friend

I’ve always tried to make myself available and approachable to anyone who needed the extra support. Whether it be my friends going through a hard time, a stranger crying in a bathroom or someone posting a sad status on Facebook – I always offer genuine support and make it clear that I am happy to listen to them when they need to talk. Lately, I’ve noticed a huge change with my friends though, and I need to put a stop to it. Continue reading

When Seeking A Diagnosis Feels Like Seeking Disapointment

Going to the doctors is easy; you call and make an appointment, you turn up and discuss your symptoms and then your doctor presents you with an answer and a solution. However this is not the case for people like me, people with rare and chronic conditions that are difficult to diagnose. Did we realise this the first few times we went to the doctors seeking answers? Of course not. We all walked into that office expecting to walk out with answers and treatment. Continue reading

Acceptance Is The Key To Finding Happiness Again

When I talk to people about my situation, most of the time I get the reaction ‘I don’t know how you do it’ or ‘how are you still so positive?’ My answer to this is acceptance. This applies to anything in life, if you can’t accept your circumstances, you can’t take control of them.

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June Recap

I’ve decided to post a brief medical update each month, along side my weekly posts. My aim is to give you an insight into the reality of my situation. As this is my first one, I’ve included the end of May into my June recap. This month was super busy with appointments so it will be a little longer than the months to come. Continue reading