Reflecting Upon The Significance Of A Diagnosis

For the last 13 months, my focus has been on getting a diagnosis. Looking at the state of my health, it makes sense. I am sick and I don’t know why, therefore I need an answer; a diagnosis. Should getting a diagnosis be the most important thing I am working toward in my life right now? Well that’s what I am trying to figure out. Continue reading

10 Ways To Make Doctors’ Appointments More Productive When You Are Chronically Ill & Undiagnosed

Doctors’ appointments can be very daunting and overwhelming when you’re chronically ill and especially if you are undiagnosed like myself. It’s so easy to get caught up in the stress and frustration of doctors’ appointments and have them be unproductive and unpleasant. To avoid this however, I have come up with a list of 10 ways to make doctors’ appointments more productive when you are chronically ill and undiagnosed. Continue reading

When Seeking A Diagnosis Feels Like Seeking Disapointment

Going to the doctors is easy; you call and make an appointment, you turn up and discuss your symptoms and then your doctor presents you with an answer and a solution. However this is not the case for people like me, people with rare and chronic conditions that are difficult to diagnose. Did we realise this the first few times we went to the doctors seeking answers? Of course not. We all walked into that office expecting to walk out with answers and treatment. Continue reading

Dancing with Words – My Illness as my Dance Partner.

As a dancer, I’ve always expressed my emotions through dance. I would tell a story of my own emotional battles through either my improvisation or my choreography. Lately I have been really down about not being able to physically express my current struggles through dance. I sometimes hear the perfect song and envision myself telling my story through movements and flow. When the realisation kicks in that I most likely will never be able to express myself with dance again, it brings me to tears every time. Continue reading

But You Look Great!

Without a doubt, this line has been used on myself by almost everyone I come across who is aware of my situation. While I am totally aware that people genuinely think they are complementing me, it just pisses me off. Normally, ‘you look great’ would be a compliment I would happily receive – however now this sentence comes with an invisible second part which makes it not so flattering. Continue reading