My First Year Anniversary: Reflecting On Loss and Rebirth.

Today marks exactly a year since my life changed completely. I’ve been procrastinating writing this post for a while now. I’m still not sure why exactly, but I have. Perhaps I am still trying to process the rollercoaster of emotions that come with any sort of anniversary. Continue reading

When Seeking A Diagnosis Feels Like Seeking Disapointment

Going to the doctors is easy; you call and make an appointment, you turn up and discuss your symptoms and then your doctor presents you with an answer and a solution. However this is not the case for people like me, people with rare and chronic conditions that are difficult to diagnose. Did we realise this the first few times we went to the doctors seeking answers? Of course not. We all walked into that office expecting to walk out with answers and treatment. Continue reading

Re-Evaluating My Identity

“Tell us about your self” was written in the empty box underneath my name. This question was one that I had never struggled with before, in fact if anything I struggled to write about myself within the word limits that capped my answer short every time. This question was now one that brought tears to my eyes and churned my stomach. Why is it so hard to answer this simple question? I feel torn between holding onto my old identity and accepting my new one, but I have no idea what my new identity is. Continue reading

The Darkness That Came Before The Light

It’s about time I open up about the beginning of my journey because to truly understand how I got to where I am now, you need to know how hard it was to get here. Picture this. You are 21, in the absolute prime of your life. You are studying your hardest at university to achieve grades in the top 10%. Continue reading

I am Tired of Being Tired

How am I you ask? Fucking tired. Scratch that, I am fucking exhausted. All the time. Every single day.

When I tell you I’m tired (which I can almost guarantee I will; multiple times) I do not mean I am tired because I had a big night or didn’t sleep well last night. When I tell you I am tired, what I actually mean is I am chronically fatigued. Continue reading

What No Diagnosis Really Means

Never in my life did it occur to me that one day I would wake up sick and (potentially) never get better. I often brush over just how scary the unknown really is. When I let myself think about it, the truth is I’m shitting myself. I have no diagnosis, which sounds like no big deal right? Wrong. I can honestly say, living with an undiagnosed illness is one of the hardest things I will ever do. Continue reading