It has taken me a long time to accept my label as a young person with a disability but now I feel quite confident labelling myself as disabled. This seems to throw people off when I say it out loud because they immediate jump to my ‘defence’ and tell me that I am not disabled, I am just unwell. While your intentions are good, this does not comfort me at all. Instead it makes me feel as though you don’t think my conditions are serious enough to meet the standards of ‘disability’. Continue reading
I came across a strange referral link to my blog website the other day so I decided to check it out and this is what I found:
When I met you, you were a little lost. You didn’t know what you wanted to do or where you wanted to go. I, however, had it all worked out; the city move, the study, the career. The more I got to know you the more I realised that I wanted you above all other things. Continue reading
“Tell us about your self” was written in the empty box underneath my name. This question was one that I had never struggled with before, in fact if anything I struggled to write about myself within the word limits that capped my answer short every time. This question was now one that brought tears to my eyes and churned my stomach. Why is it so hard to answer this simple question? I feel torn between holding onto my old identity and accepting my new one, but I have no idea what my new identity is. Continue reading
A few weeks ago I purchased my very own walking stick and today I am going to explain why this decision feels like one of the biggest decisions I’ve made so far in my almost 22 years of life.
It’s about time I open up about the beginning of my journey because to truly understand how I got to where I am now, you need to know how hard it was to get here. Picture this. You are 21, in the absolute prime of your life. You are studying your hardest at university to achieve grades in the top 10%. Continue reading
“What have you been up to?” You ask.
I respond with “Oh you know just the usual, napping, sitting on the couch, Netflix.”
“I’m so jealous! I wish I could stay home every day and watch TV!” Continue reading
It was once hinted that my blogs were a form of ‘attention seeking’ by someone close to me and it really hurt me. I then began to think about why the hell I was actually doing it and dedicating most of my time to it. I was determined to prove to myself that my blogs were not me ‘crying for help’ or ‘attention seeking’ but I came to the conclusion that as a matter of fact I do want attention for my blogs but not for selfish reasons at all. Continue reading
Never in my life did it occur to me that one day I would wake up sick and (potentially) never get better. I often brush over just how scary the unknown really is. When I let myself think about it, the truth is I’m shitting myself. I have no diagnosis, which sounds like no big deal right? Wrong. I can honestly say, living with an undiagnosed illness is one of the hardest things I will ever do. Continue reading
The answer is simple; your health is more important than money – thus making the ‘body’ the winner over the bank account. Simple, right? Wrong. In order to prioritise my health, I have to spend ridiculous amounts of money on doctors, tests, medicines etc. It’s a vicious circle because what my body needs is to rest, but my body also needs medical attention which requires an income, which requires me to ignore my body’s need for rest. Continue reading