Why it is Disrespectful to Correct me when I say that I am Disabled

It has taken me a long time to accept my label as a young person with a disability but now I feel quite confident labelling myself as disabled. This seems to throw people off when I say it out loud because they immediate jump to my ‘defence’ and tell me that I am not disabled, I am just unwell. While your intentions are good, this does not comfort me at all. Instead it makes me feel as though you don’t think my conditions are serious enough to meet the standards of ‘disability’. Continue reading

I am not getting better, I am adapting to my condition

Lately I’ve been getting a lot of comments from people that have really made me think about why my situation is so different now than it was in the initial months of me getting sick. People are starting to assume that I am getting better because I am doing a lot more than I was to start with, but that could not be further from the truth. Continue reading

The Reason Why I Write

At first my writing was basically just a journal; a public diary that I vented and explored my thoughts on my new life and the struggles that came with it. It gradually developed into a sort of self-therapy for myself and I realised that writing was helping to keep me sane. It was helping me rediscover myself and my new purpose and was the only thing I was really working towards at the time. While I still do write for myself, the main reason why I write today is for you. Continue reading

Embracing the Positives and Letting Go of the Negatives of 2017

As 2017 comes to an end, I have been thinking about how I am going to close this chapter of my life and start the next one. I want to start 2018 happy, grateful and at peace so that’s how I am going to end 2017. I want to use this post as an opportunity to remind myself of everything that I am grateful for that has come to me in this past year and to let go of any negative emotions that I don’t want to bring with me into the new year. Continue reading

Reflecting Upon The Significance Of A Diagnosis

For the last 13 months, my focus has been on getting a diagnosis. Looking at the state of my health, it makes sense. I am sick and I don’t know why, therefore I need an answer; a diagnosis. Should getting a diagnosis be the most important thing I am working toward in my life right now? Well that’s what I am trying to figure out. Continue reading