Life’s Tough When You Are Constantly Choosing Between Your Health And Your Experiences

When it comes down to it, I am ‘too sick’ for a lot of things – most things in fact. Some of these things are made totally impossible by my symptoms but others are just made extremely difficult. I’ve been struggling with the ‘extremely difficult’ things lately; do I risk my body totally failing and resulting in immense pain/fatigue or do I play it safe and stay in bed? Continue reading

41 Songs To Help Get Through Chronic Illness

Music has always been there for me during some of the hardest times of my life. I have put together a ‘chronic playlist’ which features my favourite songs that get me through a bad day with chronic illness. Some of these songs are motivational and others are just relatable. As well as reading my playlist, you can also listen to it on YouTube here: Chronic Illness Playlist. Continue reading

10 Perfect Present Ideas For Chronically Ill Friends

Birthdays have always been a very exciting thing for me; whether it be my own or someone else’s, I’ve always loved them! This year when I was asked by my friends and family what I wanted for my birthday it made it really sink in just how different my life is with chronic illness. The things I would normally ask for seem pointless and unfitting now which has been my inspiration for this post! I’ve spent the last few weeks thinking of the perfect present ideas for others with chronic illnesses.

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Why You Need To Stop Apologising To Your Chronically Ill Friend

I’ve always tried to make myself available and approachable to anyone who needed the extra support. Whether it be my friends going through a hard time, a stranger crying in a bathroom or someone posting a sad status on Facebook – I always offer genuine support and make it clear that I am happy to listen to them when they need to talk. Lately, I’ve noticed a huge change with my friends though, and I need to put a stop to it. Continue reading

A Letter To The Man Who Loves Me Despite My Chronic Illness

When I met you, you were a little lost. You didn’t know what you wanted to do or where you wanted to go. I, however, had it all worked out; the city move, the study, the career. The more I got to know you the more I realised that I wanted you above all other things. Continue reading

When Seeking A Diagnosis Feels Like Seeking Disapointment

Going to the doctors is easy; you call and make an appointment, you turn up and discuss your symptoms and then your doctor presents you with an answer and a solution. However this is not the case for people like me, people with rare and chronic conditions that are difficult to diagnose. Did we realise this the first few times we went to the doctors seeking answers? Of course not. We all walked into that office expecting to walk out with answers and treatment. Continue reading

June Recap

I’ve decided to post a brief medical update each month, along side my weekly posts. My aim is to give you an insight into the reality of my situation. As this is my first one, I’ve included the end of May into my June recap. This month was super busy with appointments so it will be a little longer than the months to come. Continue reading

My Life With Pain

Have you ever had an injury so bad that it kept you in bed for a week or so? One that came with non-stop pain and interfered with every element of your life, from your job to your personal hygiene? You may have broken a bone or had surgery. You feel as though it’s never going away, but you know it will. Give or take four to eight weeks, you will be healed and back to normal again. Imagine that this crippling pain didn’t go away though. Imagine if it clung on to you and made it self at home for an indefinite period of time. Continue reading