Reflecting Upon The Significance Of A Diagnosis

For the last 13 months, my focus has been on getting a diagnosis. Looking at the state of my health, it makes sense. I am sick and I don’t know why, therefore I need an answer; a diagnosis. Should getting a diagnosis be the most important thing I am working toward in my life right now? Well that’s what I am trying to figure out. Continue reading

10 Ways To Make Doctors’ Appointments More Productive When You Are Chronically Ill & Undiagnosed

Doctors’ appointments can be very daunting and overwhelming when you’re chronically ill and especially if you are undiagnosed like myself. It’s so easy to get caught up in the stress and frustration of doctors’ appointments and have them be unproductive and unpleasant. To avoid this however, I have come up with a list of 10 ways to make doctors’ appointments more productive when you are chronically ill and undiagnosed. Continue reading

My First Year Anniversary: Reflecting On Loss and Rebirth.

Today marks exactly a year since my life changed completely. I’ve been procrastinating writing this post for a while now. I’m still not sure why exactly, but I have. Perhaps I am still trying to process the rollercoaster of emotions that come with any sort of anniversary. Continue reading

The Hardest Thing About Being Undiagnosed is Being Subject To Doubt & Disbelief [VIDEO]

Hi everyone,

I’ve decided to speak about my biggest insecurity and hardest challenge I’ve faced while being undiagnosed and that is being doubted by others – medical professionals, strangers and even close friends and family. Watch my emotional video as I talk about my experiences.  Continue reading

Why It’s Important To Acknowledge The Mental Health Issues That Come With Being Chronically Ill

From my early teenage years, I have suffered from anxiety; however, it has never held me back. Through years of counselling and therapy, I learnt how to manage my anxiety and how to handle my triggers. However, that word is plastered all over my medical records and is something I am almost ashamed to admit in fear that my anxiety will be blamed for my symptoms. In some instances, some of my symptoms actually have been dismissed entirely because I am labelled ‘an anxious person’ by medical professionals. Continue reading

Life’s Tough When You Are Constantly Choosing Between Your Health And Your Experiences

When it comes down to it, I am ‘too sick’ for a lot of things – most things in fact. Some of these things are made totally impossible by my symptoms but others are just made extremely difficult. I’ve been struggling with the ‘extremely difficult’ things lately; do I risk my body totally failing and resulting in immense pain/fatigue or do I play it safe and stay in bed? Continue reading

When Seeking A Diagnosis Feels Like Seeking Disapointment

Going to the doctors is easy; you call and make an appointment, you turn up and discuss your symptoms and then your doctor presents you with an answer and a solution. However this is not the case for people like me, people with rare and chronic conditions that are difficult to diagnose. Did we realise this the first few times we went to the doctors seeking answers? Of course not. We all walked into that office expecting to walk out with answers and treatment. Continue reading

Re-Evaluating My Identity

“Tell us about your self” was written in the empty box underneath my name. This question was one that I had never struggled with before, in fact if anything I struggled to write about myself within the word limits that capped my answer short every time. This question was now one that brought tears to my eyes and churned my stomach. Why is it so hard to answer this simple question? I feel torn between holding onto my old identity and accepting my new one, but I have no idea what my new identity is. Continue reading

To Google Or Not To Google

Google doctor is understandably every doctor’s pet peeve but let’s be honest – we’ve all done it once or twice. It is mostly harmful to the ordinary patient seeking medical advice; however, my condition makes me a not-so-ordinary patient and I often struggle with the question – ‘to google, or not to google?’ Continue reading