The Terrifying Part of Feeling Well

My health has improved significantly in the past six months, and I honestly am so grateful for this. When your conditions are known for either consistently being bad or getting even worse over time, a significant improvement in health is an incredible blessing. I never imagined that being well (technically ‘less sick’ I am still nowhere near a healthy person’s definition of ‘well’) would be scarier than being sick. Continue reading

Life After Diagnosis

I’ve been very quiet lately in the blogosphere, but I am okay – I promise.

I’ve been struggling to write in all honesty, every time I open up a blank document with an idea I can’t seem to find the words I need to properly explain the things I need to say. I guess I have just been in a stage of discovery, rather than reflection, which makes it difficult for me to write. Continue reading

My 10 Year Challenge: A Letter to my 13-year-old Self

The recent ’10-year challenge’ that has gone viral on social media has got me thinking – what would 13-year-old me think of 23 year old me? Would she be proud? Would she look up to me? Would she be happy with the life I’ve made for myself? It’s really inspired me to write to her and about her, my past self.

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The End of a Relationship, The Start of a New Journey…

Some of you may already know that Justin and I have recently split up after an incredible five years together. I had to make this decision for my mental health as I was losing myself in this relationship and not coping very well with everything. It was the hardest decision I’ve ever had to make but it was time to put myself first. Continue reading

My Second Year Anniversary With Chronic Illness

I’ve stared at this blank document for days now, each time the tears welled up and I could not find the words to write. I am feeling extremely emotional and fragile about my two-year anniversary with illness, and I’ve really struggled to write anything at all this year so this is going to be tough for me to write. Continue reading

Why it is Disrespectful to Correct me when I say that I am Disabled

It has taken me a long time to accept my label as a young person with a disability but now I feel quite confident labelling myself as disabled. This seems to throw people off when I say it out loud because they immediate jump to my ‘defence’ and tell me that I am not disabled, I am just unwell. While your intentions are good, this does not comfort me at all. Instead it makes me feel as though you don’t think my conditions are serious enough to meet the standards of ‘disability’. Continue reading

I am not getting better, I am adapting to my condition

Lately I’ve been getting a lot of comments from people that have really made me think about why my situation is so different now than it was in the initial months of me getting sick. People are starting to assume that I am getting better because I am doing a lot more than I was to start with, but that could not be further from the truth. Continue reading